Background: The Parliamentary Committee on Palliative and Compassionate Care (PCPCC) an all party group of members of parliament (MPs), dedicated to improving care for elderly, dying and vulnerable Canadians. It is unique in the history of the Canadian Parliament as it was formed by the MPs on their personal initiative and funded out of their member office budgets. In November 2011 PCPCC released a comprehensive document for presentation to the Ontario government entitled – Not to be Forgotten
– Care of Vulnerable Canadians.
The issues primarily dealt with in the report were: 1) Palliative and end-of-life care, 2) Suicide Prevention, 3) Elder Abuse, 4) A disability perspective on health care and inclusive community living.
The palliative care section of the report expanded to include an integrated community care model best able to address the care needs of persons with chronic conditions, a framework which is important to all our issues. A section on the urgent need for better pain treatment, including chronic pain, was also included; as was material on home care and long term care. It also became clear that the issue of family caregiver support needs to be addressed, as family caregivers are often women.
Part 1 Palliative and end-of-life care:
· While progress has been made, Canada still falls far short of quality end-of-life care for all, with only 16-30% of those who need it receiving palliative care.
· Even where palliative care is available quality and accessibility will vary based on place of residence. Some parts of the Greater Toronto Area have palliative care services and some do not. This patchwork of services becomes still more pronounced in less populated regions.
· The palliative care philosophy is person-centered, family-focused and community-based. It moves us from disease or condition-specific care to person-centered care. It recognizes that the psycho-social and spiritual dimensions have profound impact upon health and well being, and that a variety of specific conditions may be operating on different levels in the chronically ill or dying person’s life. The philosophy of palliative care permeating medical culture is more important than the simple delivery of “services”. As family physicians and local nurses come to accept a palliative care philosophy, palliative care services can begin to develop organically in
· Palliative care is best delivered within a home and community-based integrated care system, which is generally more cost effective and care effective.
· Palliative care should be delivered in an integrated fashion, including: home care, small
community hospices, and palliative care in nursing and LTC homes.
· While fully recognizing the importance of this range of palliative care options, the committee wishes to emphasize the ideal of caring for a person as close to their home and community as possible. Care in the home, surrounded by family and friends, with little institutional and bureaucratic overlay, is practised successfully throughout the world and in parts of Canada. These successes need to be replicated all over Ontario.
· Capacity building is required to meet the needs of all Ontarians for palliative and chronic care.
Building up home care capacity is extremely important.
· A Palliative Care Strategy is desperately needed.
Reference: Parliamentary Committee on Palliative & Compassionate Care http://pcpcc-cpspsc.
RESOLUTION: THEREFORE BE IT RESOLVED that BPW Ontario urges the Government of Ontario and the Ministry of Health and Long Term Care to develop a provincial Palliative Care Strategy as outlined in the Parliamentary Committee on Palliative and Compassionate Care’s report: Not to be Forgotten – Care of Vulnerable Canadians by doing the following:
• Implement a right to palliative care for all residents of Ontario;
• Establish a Palliative Care Secretariat to develop and implement a Provincial Palliative and End-of-Life Care Strategy;
• Develop and implement quality standards as benchmarks;
• Coordinate and disseminate research and information resources;
• Provide ongoing implementation coordination support as the Strategy is implemented in Ontario;
• Develop and fund a flexible integrated model of palliative health care delivery;
• Provide stable funding for innovative programs, such as the Pallium Project and the Canadian Virtual Hospice;
• Fund a provincial public awareness campaign on palliative and end- of-life care;
• Strengthen and support the home delivered palliative care resources of the First Nations, Métis and Inuit communities that are sensitive to community, cultural, familial and spiritual needs;
• Develop a rural palliative care delivery strategy.
©BPW Ontario www.bpwontario.com
Article ID: 4365